The HCBS Advocacy Coalition supports the full inclusion of people with disabilities and aging populations in the community. We work collaboratively to help states fully comply with the HCBS Settings Rules and assist stakeholders in understanding the rule. These efforts are essential to achieving systems change that results in truly integrated settings, where people with disabilities can live, work, receive services, and fully engage in community life.
This website is intended to be useful for those communities that advocate for and benefit from the Medicaid Home and Community-Based Services, including older adults and people with a range of disabilities. The website was originally created by the three national Developmental Disabilities (DD) Network Partners that represent the entities authorized in the DD Act and has grown to include several disability rights organizations (in alphabetical order):
Association of People Supporting Employment First (APSE) is the only national organization with an exclusive focus on integrated employment and career advancement opportunities for individuals with disabilities.
Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs located in every U.S. state and territory. DD Partner (see below)
Autistic Self Advocacy Network (ASAN) is a 501(c)(3) nonprofit organization run by and for Autistic people created to serve as a national grassroots disability rights organization, advocating for systems change and ensuring that the voices of Autistic people are heard in policy debates and the halls of power.
Bazelon Center for Mental Health Law is a national advocacy organization whose mission is to protect and advance the rights of adults and children who have mental disabilities, and envisions an America where people who have mental illnesses or developmental disabilities exercise their own life choices and have access to the resources that enable them to participate fully in their communities.
The Center for Public Representation is dedicated to promoting change in the quality of lives of individuals with disabilities and to pursuing systemic reform through enforcement of legal rights and policy advocacy on a state and national basis. The Center’s primary purpose is to serve people with disabilities, and particularly those who are institutionalized, discriminated against, or otherwise denied fundamental human rights. The Center is committed to fostering equality, diversity, and social justice in all of its activities.
Collaboration to Promote Self Determination (CPSD) is an advocacy network of 10 national disability organizations who have come to pursue modernization of the federal adult system of services and supports for persons with intellectual and developmental disabilities, so that they can become employed, live independently in an inclusive community, and rise out of poverty.
The Consumer Voice is the leading national voice representing consumers in issues related to long-term care, helping to ensure that consumers are empowered to advocate for themselves. We are a primary source of information and tools for consumers, families, caregivers, advocates and ombudsmen to help ensure quality care for the individual.
For more than 40 years the Council on Quality and Leadership (CQL) has been a leader in working with human service organizations and systems to continuously define, measure and improve quality of life and quality of services. CQL offers training, accreditation, consultation and certification services to organizations and systems that share a vision of dignity, opportunity and community for all people.
Justice in Aging is a national non-profit legal advocacy organization that fights senior poverty through law. Formerly the National Senior Citizens Law Center, since 1972 we’ve worked for access to affordable health care and economic security for older adults with limited resources, focusing especially on populations that have traditionally lacked legal protection such as women, people of color, LGBT individuals, and people with limited English proficiency.
National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing all State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c)3 with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self-directed services and support for individuals with developmental disabilities. DD Partner (see below)
National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP). Collectively, the P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the United States. NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities. DD Partner (see below)
National Down Syndrome Congress (NDSCC) s a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information.
National Health Law Program (NHeLP) protects and advances the health rights of low-income and underserved individuals and families. NHeLP advocates, educates and litigates at the federal and state levels.
TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families, and self-advocates. The inclusive practices, TASH validates through research, have been shown to improve outcomes for all people.
The Arc of the United States is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. We encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities.
National DD Network Partners, that represent the entities authorized in the DD Act, joint comments on HCBS Rule, December 2010
The DD Act directs the DD Network Partners to collectively promote Community Integration. This toolkit highlights the UCEDDs role and identifies the possibilities for collaboration around this activity.
The graphic shows a large circle split into thirds, each highlighting one DD Network partner. The wedges read:
UCEDDs: University Centers for Excellence in Developmental Disabilities. 1 or more in every US state:
- Provide interdisciplinary pre-service preparation
- Perform community services and training
- Conduct research, evaluations, and information dissemination
P&As: Protection & Advocacy
- Monitor and investigate conditions in facilities that care for people with disabilities
- Provide legal representation to people with disabilities
- Ensure equal access to life in the community
DD Council: Developmental Disabilities Council
- Understanding system barriers and changing them through initiatives
- Working with stakeholders to achieve enduring change
- Empowering advocates
This website is published by the Association of University Centers on Disabilities and funded in part by the Administration on Intellectual and Developmental Disabilities through technical assistance contract #HHSP23320112917YC. The contents do not necessarily reflect the views or policies of the Administration on Intellectual and Developmental Disabilities, Administration on Community Living, U.S. Department of Health and Human Services, or the US Government.